DEPARTMENT OF DEFENSE - CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS

Overview | Consortium History | Management and Oversight | Research Site Details | Approved Trial Details

The Neurofibromatosis Clinical Trials Consortium (NFCTC, http://www.uab.edu/nfconsortium) was established by the Department of Defense Neurofibromatosis Research Program (NFRP) to develop and perform clinical trials for the treatment of neurofibromatosis (NF) complications in children and adults. The Consortium is composed of thirteen clinical sites, six collaborating sites, and an Operations Center at the University of Alabama at Birmingham under the direction of Dr. Bruce Korf. The purpose of the Operations Center is to provide administrative, data management, and statistical support to the NFCTC. Each of the clinical and collaborating sites has expertise in the treatment and management of NF and an established patient population available for clinical trials.

Consortium Sites
(As listed on http://www.uab.edu/nfconsortium/sites)

Operations Center
University of Alabama at Birmingham
Principal Investigator: Bruce R. Korf, MD, PhD
Phone: 205-996-2916
https://www.uab.edu/medicine/genetics/
https://www.uab.edu/medicine/genetics/neurofibromatosis-clinic

Sites
Boston/Harvard Center for NF and Allied Disorders
Principal Investigator: Nichole Ullrich, MD, PhD
Phone: 617-632-4595
http://www.childrenshospital.org/centers-and-services/multidisciplinary-neurofibromatosis-program

Children's Hospital at Westmead, University of Sydney
Principal Investigator: David Little, MD
Phone: 02-9845-3057
This site will only recruit for the BMP-2 (Bone) study.
http://www.chw.edu.au/research/groups/neurogenetics/05_neuro.htm

Children's Hospital of Los Angeles
Principal Investigator: Tena Rosser, MD
Phone: 323-361-7319; 323-361-5825
http://www.chla.org/site/c.ipINKTOAJsG/b.5207559/k.BF78/Home.htm

Children's National Medical Center
Principal Investigator: Roger Packer, MD
Phone: 202-476-5299; 202-476-4481
http://www.childrensnational.org/
http://www.childrensnational.org/DepartmentsandPrograms/default.aspx?Id=100017&Type=Program&Name=Neurofibromatosi Institute

Cincinnati Children's Hospital Medical Center
Principal Investigator: Elizabeth Schorry, MD; Brian Weiss, MD
Phone: 513-636-8773; 513-636-2047
http://www.cincinnatichildrens.org/bio/S/elizabeth-schorry/
http://www.cincinnatichildrens.org/

Indiana University
Principal Investigator: Wade Clapp, MD
Phone: 317-274-4928
http://www.indiana.edu/

National Cancer Institute
Principal Investigator: Brigitte Widemann, MD
Phone: 301-402-1848; 301-496-8009
http://www.cancer.gov/

New York University Medical Center
Principal Investigator: Jeffrey Allen, MD
Phone: 212-263-9945
http://www.med.nyu.edu/
http://pediatrics.med.nyu.edu/hemonc/patient-care/neurofibromatosis-center

University of Alabama at Birmingham
Principal Investigator: Bruce R. Korf, MD, PhD
Phone: 205-934-5140
https://www.uab.edu/medicine/genetics/
https://www.uab.edu/medicine/genetics/neurofibromatosis-clinic

University of Chicago
Principal Investigator: James Tonsgard, MD
Phone: 773-203-2344
http://www.uchicagokidshospital.org/specialties/neurology/patient-guides/neurofibromatosis/index.html

University of Pennsylvania
Principal Investigator: Michael Fisher, MD
Phone: 267-426-5503
http://www.chop.edu/
http://www.chop.edu/service/neurofibromatosis/home.html

University of Utah
Principal Investigator: David Viskochil, MD, PhD
Phone: 801-587-9017
http://research.utah.edu/

Washington University
Principal Investigator: David H. Gutmann, MD, PhD
Phone: 314-454-4240; 314-747-5384
http://wuphysicians.wustl.edu/dept.aspx?pageID=38&ID=4

Affiliate Sites
Ann & Robert H. Lurie Children's Hospital of Chicago
Principal Investigators: Robert Listernick, MD; Stewart Goldman, MD
Phone: 773-975-8664
https://www.luriechildrens.org/en-us/Pages/index.aspx

Children’s Healthcare of Atlanta
Principal Investigator: David S. Wolf, MD, PhD
Phone: 404-785-4688
https://www.choa.org/
Currently NF2 study only.

Johns Hopkins Hospital
Principal Investigator: Jaishri Blakely, MD
Phone: 410-502-6732; 410-955-8009
http://www.hopkinsmedicine.org/
http://www.hopkinsmedicine.org/kimmel_cancer_center/centers/pediatric_oncology/cancer_types/neurofibromatosis.html

Massachusetts General Hospital
Principal Investigator: Scott Plotkin, MD, PhD
Phone: 617-643-1933
http://www.massgeneral.org/default.aspx
http://www.massgeneral.org/neurology/services/treatmentprograms.aspx?id=1357

Royal Children’s Hospital
Principal Investigator: Kathryn North, AM
Phone: +61 3 8341 6226
http://www.rch.org.au/home/

Texas Scottish Rite Hospital
Principal Investigator: Steve Richards, MD
Phone: 214-559-8562
http://www.tsrhc.org/
Currently BMP2 study only.



Last updated Thursday, May 18, 2017