Overview | Consortium History | Management and Oversight | Research Site Details | Approved Trial Details | NFRP Clinical Trials

The Neurofibromatosis Clinical Trials Consortium (NFCTC, was established by the Department of Defense Neurofibromatosis Research Program (NFRP) to develop and perform clinical trials for the treatment of neurofibromatosis (NF) complications in children and adults. The Consortium is composed of thirteen clinical sites, six collaborating sites, and an Operations Center at the University of Alabama at Birmingham under the direction of Dr. Bruce Korf. The purpose of the Operations Center is to provide administrative, data management, and statistical support to the NFCTC. Each of the clinical and collaborating sites has expertise in the treatment and management of NF and an established patient population available for clinical trials.

Consortium Sites
(As listed on

Operations Center
University of Alabama at Birmingham
Principal Investigator: Bruce R. Korf, MD, PhD
Phone: 205-996-2916

Boston/Harvard Center for NF and Allied Disorders
Principal Investigator: Nichole Ullrich, MD, PhD
Phone: 617-632-4595

Children's Hospital at Westmead, University of Sydney
Principal Investigator: David Little, MD
Phone: 02-9845-3057
This site will only recruit for the BMP-2 (Bone) study.

Children's Hospital of Los Angeles
Principal Investigator: Tena Rosser, MD
Phone: 323-361-7319; 323-361-5825

Children's National Medical Center
Principal Investigator: Roger Packer, MD
Phone: 202-476-5299; 202-476-4481 Institute

Cincinnati Children's Hospital Medical Center
Principal Investigator: Elizabeth Schorry, MD; Brian Weiss, MD
Phone: 513-636-8773; 513-636-2047

Indiana University
Principal Investigator: Wade Clapp, MD
Phone: 317-274-4928

National Cancer Institute
Principal Investigator: Brigitte Widemann, MD
Phone: 301-402-1848; 301-496-8009

New York University Medical Center
Principal Investigator: Jeffrey Allen, MD
Phone: 212-263-9945

University of Alabama at Birmingham
Principal Investigator: Bruce R. Korf, MD, PhD
Phone: 205-934-5140

University of Chicago
Principal Investigator: James Tonsgard, MD
Phone: 773-203-2344

University of Pennsylvania
Principal Investigator: Michael Fisher, MD
Phone: 267-426-5503

University of Utah
Principal Investigator: David Viskochil, MD, PhD
Phone: 801-587-9017

Washington University
Principal Investigator: David H. Gutmann, MD, PhD
Phone: 314-454-4240; 314-747-5384

Affiliate Sites
Ann & Robert H. Lurie Children's Hospital of Chicago
Principal Investigators: Robert Listernick, MD; Stewart Goldman, MD
Phone: 773-975-8664

Children’s Healthcare of Atlanta
Principal Investigator: David S. Wolf, MD, PhD
Phone: 404-785-4688
Currently NF2 study only.

Johns Hopkins Hospital
Principal Investigator: Jaishri Blakely, MD
Phone: 410-502-6732; 410-955-8009

Massachusetts General Hospital
Principal Investigator: Scott Plotkin, MD, PhD
Phone: 617-643-1933

Royal Children’s Hospital
Principal Investigator: Kathryn North, AM
Phone: +61 3 8341 6226

Texas Scottish Rite Hospital
Principal Investigator: Steve Richards, MD
Phone: 214-559-8562
Currently BMP2 study only.

Last updated Tuesday, November 27, 2018